ACPMP Research Foundation Q&A

Aug 12, 2021 | Future of Healthcare, Patient Advocacy

1. What is the Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation? The ACPMP Research Foundation is a charitable organization created in 2008 by a community of individuals affected by appendix cancer, pseudomyxoma peritonei (PMP) and related peritoneal...

No Stomach For Cancer Foundation Q&A

Jun 21, 2021 | Patient Advocacy, Societal Impact

1. What is the No Stomach For Cancer organization? In 2009, after losing two family members to stomach cancer and learning about the CDH1 genetic mutation that increases the risk of developing the disease, Karen Chelcun Schreiber founded No Stomach For Cancer (NSFC)....

SYNGAP1 Foundation Q&A

Apr 6, 2021 | Innovation, Patient Advocacy

1. What is the SYNGAP1 Foundation? SYNGAP1 Foundation is the leading non-profit patient advocacy group dedicated to improving the quality of life for patients and families affected by a SYNGAP1 gene mutation or variant. SYNGAP1 is a gene located in the brain that...