Carcinoid Cancer Foundation Q&A

Dec 14, 2021 | Patient Advocacy

What is the Carcinoid Cancer Foundation? The Carcinoid Cancer Foundation (CCF), created in 1968, is the oldest neuroendocrine cancer foundation in the United States, and to the best of our knowledge, in the entire world. The Foundation’s mission is threefold: to...

Aplastic Anemia/MDS International Foundation Q&A

Nov 19, 2021 | Patient Advocacy

What is the Aplastic Anemia and MDS International Foundation? The Aplastic Anemia and MDS International Foundation (AAMDSIF) is dedicated to assisting and supporting people who have bone marrow disorders, including aplastic anemia, myelodysplastic syndrome and...

National Neutropenia Network Q&A

Oct 12, 2021 | Patient Advocacy

What is the National Neutropenia Network? The National Neutropenia Network (NNN) is a non-profit organization based in Michigan that was started in 1994 to support neutropenia patients and their loved ones. Neutropenia is a very rare blood condition in which there are...

CureDuchenne Q&A

Sep 17, 2021 | Patient Advocacy

1. What is the CureDuchenne organization? Founded in 2003 by the parents of a child with Duchenne, CureDuchenne is recognized as a global leader in research, patient care and innovation for improving and extending the lives of individuals with Duchenne muscular...

ACPMP Research Foundation Q&A

Aug 12, 2021 | Future of Healthcare, Patient Advocacy

1. What is the Appendix Cancer Pseudomyxoma Peritonei (ACPMP) Research Foundation? The ACPMP Research Foundation is a charitable organization created in 2008 by a community of individuals affected by appendix cancer, pseudomyxoma peritonei (PMP) and related peritoneal...