Patient Advocacy Group Spotlight Series
Get to Know These Patient Advocacy Groups
We are pleased to present a series of articles from various reputable patient advocacy groups. These informative features highlight resources each organization offers to help you overcome the challenges that cancer or rare diseases often pose. Our goal at Biologics is to help you thrive as you seek treatment, and our collaboration with these nationally recognized organizations is an important part of that mission.
The Association for Creatine Deficiencies aims to provide education about CCDS; to advocate for early intervention through newborn screening; and to promote and fund medical research for effective treatments and cures.
No Stomach For Cancer Foundation aims to advance awareness about stomach cancer; provide a support network for affected families; and encourage research efforts for early detection, screening and prevention of the disease.
The Cholangiocarcinoma Foundation is the largest foundation that serves cholangiocarcinoma. It is dedicated to educating and supporting patients by providing the personal guidance and tools they need to navigate this complex disease.
Bridge the Gap – SYNGAP Education and Research Foundation (BTG) was founded in 2014. Today, it is the leading non-profit patient advocacy group dedicated to improving the quality of life for patients and families affected by the rare SYNGAP1 gene mutation or a variant.